Thursday, August 16, 2012

Got a call from one of the nurses at the Huntsman clinic today.  I was a little nervous when she said that my doctor had asked her to call me.  Then she went on to say that she was calling with my CA-125 blood test results.  Then I thought, "Uh-oh.  It must be bad news if they are calling me with the results."  Well she went on to say that my number had been 22 back in June with my last test and that yesterday the number was down to 20!  (Which is totally good news that it is still going down, but I was thrown off by the call because they have not been consistently calling me with the results...)

Wednesday, August 15, 2012

Dr's appt at Huntsman today.  It still feels weird to only come up here to the Huntsman Cancer Institute every 3 weeks and to only meet with my doctor every 6 weeks!  Today while I was having my port accessed and blood taken for my labs, the nurse mentioned to me a fundraiser run that is coming up in September, specifically for Ovarian Cancer (and other gynecological cancers).  Another nurse went out and got me a flier about it.  It will take place on September 8 in downtown Salt Lake.  I found out some more information about it online.  Now I need to decide if it would be worth it for me to go and take some of my family with me or do I need to be at my kids' soccer games that morning.  (I am helping to coach my son's team this year and then our 7 year old is playing for the first time.)

Afterwards I met with the doctor and things are looking good for me, so I keep telling people that we are at the wait and see phase - which is a hard stage to be at.  Everyone is amazed that I am not taking medications for anything, but I'm not sure what they expect me to be taking.  I asked the doctor today if she would recommend that I take anything and she just said I could take just a standard over-the-counter multivitamin if I wanted and she also said that she usually recommends women take calcium tablets with vitamin D in it.  Maybe I'll take a look and pick some up next time I'm at the grocery store.

I got another winner of a seat today in the infusion room...  In the far corner once again with a great view of the cinderblock wall outside. ;)  When I checked-in for my infusion they told me that they were behind and the wait would be about a half hour - just to get in the infusion room.  After they finally called me into the infusion room it was quicker than it has been the last few times I have been there.  They took my blood pressure and then maybe 20-30 minutes after I got in there they had me hooked up to the Avastin.

Monday, August 13, 2012

Met with my surgeon last week (Aug 7).  I am feeling fine and everything checked out fine with my appointment.  She asked me how long I was going to be on the Avastin and I told her that the Huntsman team said that I will be on it indefinitely.  The way she asked me though I was curious what she thought about the drug, so I asked her.  She said that since I was sooo young she thinks that it might help to give me an extra edge to keep the cancer at bay.  She said that if she were in my position she would probably do it as well.  Right now since I haven't had any noticeable side-effects I think we will carry on with the Avastin.

Thursday, August 2, 2012

Picture updates of my hair:

This first one is with my hair standing straight up after my shower.  I wanted to show this one because you can't tell how long my hair is after I put mousse in it and force it to lay down on my head.


I have quite the bed head in the morning when I get up.  This morning my son saw my hair after I got out of bed and he said, "Whoa Mom!  You're hair's getting really long!"  I'll try and get a picture of it one of these mornings.

So here are some advantages to having very short hair:

- I haven't had to use a brush in a LONG time.
- You save money on shampoo and conditioner.
- Hair dries almost instantly after showering or swimming.
- Hair never gets in your eyes.

My hair is at a length now where I'm not sure what to do with the hair around my ears.  If I was going to keep my hair at this length then I would just trim it around my ears but I think I still want it to grow out more so I am hesitant to do much cutting.  Right now I try and get the very front hair to come down the side of my face and then I try and sculpt the rest of the hair around and behind my ears.  The problem comes when I wear my sunglasses because it moves the front hair back as well and then it looks funny and sticks out to the side.  It's so funny how there are different problems at different lengths!  At least at this length I don't have to worry so much about my scalp and ears getting sunburned!