Wednesday, April 23, 2014

I took MJ with me this morning to get my additional labs drawn.  I just had her sit on the floor next to me and let her play my ipad while they were drawing the blood.  They took it through my vein this time.

Tuesday, April 22, 2014

Got a call from the study coordinator who apologized and said that she needed me to come back in because they hadn't drawn all of the labs that were needed for the study...  She apparently had been out sick for a couple of days and completely forgot to inform the lab that I needed the extra study tubes taken as well.  So I will be headed back in tomorrow morning.

Monday, April 21, 2014

For the first round of the study drug, they draw labs at the 2 week mark just to make sure that everything still looks good after being on the drug for 2 weeks.  So I went in in the morning for the lab draw and it was pretty straight forward.

Wednesday, April 16, 2014

So I went back into the satellite clinic to take some additional mammogram images.  After having the images done and then meeting with a doctor who did an ultrasound as well, everything appears to be fine and normal, thank goodness.

Tuesday, April 15, 2014

Today I took the kids to the Tracy Aviary and when we were about to leave to return home I got a call from the nurse at Huntsman saying that there was something slightly abnormal looking on my mammogram screening and they want me to come back in for some follow ups to make sure it is nothing.  Not quite the news I was wanting to hear at this time...

Monday, April 14, 2014

I think I am finally getting a handle on the nausea.  This third medication is definitely helping and I am able to eat again.  This morning I went in for a mammogram.  Nothing really to report there.

Thursday, April 10, 2014

So by the time Thursday rolled around I was feeling really, really sick.  All I could do was lay around on the couch and sleep.  I had no desire to eat anything and had no energy.  I was also having a really hard time getting myself to even want to take the study drug.  By this point I have tried two of the three nausea medications that I was given and neither seemed to do any good other than to make me constipated.  This morning I emailed the study coordinator to let her know what was going on and that I wasn't sure I wanted to continue on the study if it doesn't get better.  The nurse practitioner called me back shortly after that and we talked about some things we could try.  She had me get the last prescription filled and said to take it 30 minutes before I take the veliparib.  She also decided to send me down to the clinic to get some I.V. fluids with anti-nausea medication as well.  My kids were off-track at this time so I was able to leave them home and go over to the satellite clinic.  After some problems with the nurse not quite knowing what she was doing with using my port things went fine and I was able to get the fluids and I felt quite a bit better afterwards.  I also was given a prescription to take at night that is supposed to increase my appetite so I will feel like eating again.

By this point in the week I had skipped out on mutual on Wednesday night and ended up canceling soccer practice on Thursday.  I also was supposed to teach a combined YW lesson on Sunday but found someone to trade with me so I can concentrate on feeling better.  I had been contacted by my relief society president on Thursday morning so I emailed her back and let her know what was going on as well and we decided to have a few meals brought in until I felt better.  So she brought the first meal that night which was a great help.  My poor husband has been going to work and then getting home around 6:15 in the evening with me on the couch, the house a mess and the kids hungry.

Tuesday, April 8, 2014

Last night I started feeling a little nauseous.  I feel like I need to try and keep something in my stomach at all times or I will start to feel sick.  This morning I went to the grocery store and was feeling alright but not too long after I got home I started feeling sick and ended up throwing up.  After that I felt a little better but then later that evening I didn't feel well at all.  On Monday the doctors gave me 3 different prescriptions to try in case I get nauseous.  So I went and filled the first prescription and tried taking that.  It didn't seem to make much difference.

Monday, April 7, 2014

Started my first doses of Veliparib today.  I went in to meet with the doctor and have some labs drawn. They also did another EEG of my heart (for the study).  I took the first dose after the appointment and so far feel fine.  The most common side effects are nausea and lack of energy.  They said that it side effects usually come within the first few hours of taking the first dose.  I will be taking two pills twice a day.

Thursday, April 3, 2014

Got a call from the study coordinator this afternoon.  My CA-125 number has gone back up again and I qualify now for the study.  My number went up to 77...  She asked if I still wanted to do the study and if so, if I could come in on Monday to draw some more labs and meet with my doctor.  After that she will give me the veliparib to start that day.  I was a little disappointed that my number went back up.  I was hoping that there was something else causing my number to go up and now it was going to go back down to normal.

So I will be going in on Monday to meet with the doctor and get started on the new study drug.  Hopefully I don't get any side-effects from it.  They say that I should know pretty quickly if it will cause nausea or tiredness.

Wednesday, April 2, 2014

Met with my surgeon today.  I asked her about the veliparib study that I may start depending on my CA-125 number today.  She said that it is probably a good drug to go on because it has showed some good results, especially for those that are BRCA-1 positive.  She is hopeful that my CA-125 number will not go back up though.  Other than that everything looked fine for my exam and she is fine waiting 6 months to see me again- unless something progresses with the cancer.

After my appointment I drove up to Huntsman to have some blood drawn for the CA-125 test.  I will find out results from it tomorrow.