Thursday, February 4, 2016

I have been a little hesitant to post my last CA-125 number... I found out the day after my January appointment that my CA-125 number had jumped up to 18. Now that is not a huge jump but it has been concerning to me. When I was on the Avastin, my CA-125 number was low and then it gradually started climbing back up until it passed the normal level of 35 and then double that to the point that I was kicked off of that study drug.

I am happy to report though that I got my lab results back for yesterday's appointment and my number has dropped back down to 14! Yea! I think my doctor was a little concerned as well because we didn't discuss it at yesterday's appointment at all but she emailed me as soon as she got the results back and let me know that it had dropped back down. It is a little nerve wracking at times waiting for that test result to come back.

Wednesday, February 3, 2016

I got an email from the study coordinator last Thursday letting me know that the study sponsor has decided to allow me to drop the lab that needs to be drawn from a vein so they can continue to use my port!

Things went well for my appointment. My nurses and doctor remark every time I come in on how easy of a patient I am. :) I apparently have an affect on the nurses though because I have now caused a second nurse to forget to flush my port with heparin... She felt really bad! After she had drawn the labs and flushed the port with saline she took the needle out and put a bandaid on and then looked down and realized what she had done! So she had to get out all of the supplies again and redo everything a second time! I guess I need to stop being so friendly and conversational with the nurses while they are working on me!

My doctor said that they are wrapping up the studies on the drug that I am on and getting ready to present the results at a medical conference in June. She sounded pretty excited about it all and said that things are looking good for this drug and that I am helping to change future treatments for cancer patients!