Wednesday, October 29, 2014

Had another appointment with my Huntsman team today.  There was a resident doctor who met with me first and then my regular doctor came in.  Everything is still looking fine.  There is one number in my labs that they are a little concerned about but they say with the vitamin B12 supplement it can take up to 3 months to see the number change - assuming that the problem is low vitamin B12 levels...

Tuesday, October 7, 2014

Had an appointment with my surgeon's office today.  Everything is still looking fine so I will see them again in 6 months unless something new comes up.  I was hoping to be able to talk with my surgeon today but she was busy with some new patients so I only saw the nurse practitioner.

Monday, October 6, 2014

**Note - I have been getting way behind in my posts - both on this blog and on my family blog.  For those that don't know, we recently moved and I will blame that for my lack of blogging lately.  I will try my very hardest to get everything up-to-date before the holiday season is upon us!  This blog will be the easiest of the two so I will start here.  And please know that we are all doing well and are as busy as ever!

Wednesday, October 1, 2014

It is weird just having my youngest at home with me during the days now!  Yesterday my mom came to my house to watch MJ during my CT scan and today I dropped MJ off at my mom's house on my way to my appointment.  My scans looked good once again.  The Huntsman Hospital and University of Utah Health Group now have an online system where I can see my test results once my doctor releases them so right before she came in to visit with me I had noticed that she had just released my CA-125 number.  So I quickly clicked on the results from that test and my number has dropped to 11!  My new all-time low!

They can't draw my study labs at the clinic near my house (where I have most of my scans now), so after my appointment I had to go and have some more labs drawn.  Some of the nurses tend to overreact to my skin and my port at times.  I have skin that flushes really easily and it is also pretty sensitive.  So when they are rubbing my port with alcohol to clean the skin prior to accessing it, it usually turns bright red and the nurses get nervous that I am having an allergic reaction or something is wrong with my port.  I always have to keep reassuring them that it is perfectly normal for me and that I will keep an eye on it and report if there is anything unusual going on.