So my CA-125 number has crept up to 19.  At my lowest it was 15 - back in February.  They are not concerned yet with that number, but if it continues to go up they may order some more tests.  I am still well in the normal range which is 35 or lower.

I didn't get my normal reminder call yesterday about my appointment this afternoon so I called in to make sure that I had the date and time right.  When I got in to the office, I found out that the regular nurse that works with my doctor has been out for the last 2 weeks because she had her tonsils removed.

It was kind of weird today at the office because I sat around in the waiting room for a while before they finally called me back.  Then when the nurse called me back she took my vital signs and then took me straight to an examining room without having my labs drawn first.  I asked the nurse about it and she said that they would do the labs afterwards.  That made me a little nervous while waiting for the doctor to come in, wondering if maybe they had some bad news about my CT scan and so they weren't going to do the standard labs today.  When the nurse practitioner came in though, the first thing that she said was that my CT scans looked good!!  Yea!!  The nurse practitioner talked to me and then did my exam.  We talked about some lower back pain that I have been having and we talked about getting a bone density test done the next time I come in.  Then the doctor came in to see me and she said that she is always so happy to get the scan results back and seeing them clear!  She said that she still remembers the phone call from my surgeon back in 2011 telling her that she had a very young patient with stage 4 cancer and would they be able to see me at Huntsman.  The doctor said that it gave her chills thinking about that and that she still very clearly remembers that phone call.  In some ways it seems like a long time ago and in other ways it seems like just yesterday...

After I finished up with the doctor, they took me over to get my labs drawn.  Then I went and grabbed a quick bite for lunch before heading to the infusion room.  I went outside to eat my lunch because it was such a beautiful day but afterwards I had a hard time finding my way back into the building where I needed to be.  Somehow I ended up in the hospital side of the building on the floor I needed to be on and then found a door that said it was to the waiting area so I went out the door and was right at the infusion check-in desk.  When I went up to the desk the lady behind it asked, "Where did you come from?"  It was kind of funny.

My infusion itself went pretty smoothly.  I will most likely hear my CA-125 results tomorrow.

I finally got my hair cut this morning!!  I have been wanting to get it cut for the last 2 months but just hadn't gotten around to it.  It has been getting longer and longer and harder and harder for me to get fixed and looking good in the mornings.  There have been several days where I just didn't have the time to do anything with it so I threw the top part of it into a very short ponytail and then went about my day.  It feels much better having it cut!  I was feeling very shaggy!  I think I will keep it short for the summer and then decide what I want to do with it (although right now I am leaning towards short).  I will try and post some pictures when I get a minute.

They have rescheduled all of my upcoming appointments so I won't be going in tomorrow to visit the doctor.  They have bumped it back a week - which unfortunately means that I will have to go in on my husband's birthday...

Went to the satellite clinic for another CT scan today and thankfully it went much more smoothly than the last time.  I had to go to their infusion clinic to get my port accessed and deaccessed, but it was just right around the corner from the imaging lab.  I was supposed to have labs drawn as well but when I was looking at my calendar last night I realized that I am going to be out of town right around the time of one of my avastin infusions so I have been trying to get ahold of my doctor's office to see if we need to reschedule my appointment this Wednesday and shuffle all of the appointments around.  I think I can have up to 4 weeks in-between my infusions so maybe we can push them all back a week or so so that I won't need one while we are out of town!