My infusion was pretty routine today.  Afterwards I had a bone density scan scheduled at the U of U hospital.  It was in a really old section of the hospital and they gave me a piece of paper with directions on how to find it.  It was quite the labyrinth to get there.  Once I found the room I wasn't sure what to do.  There was no one in the entrance to the room and there were several old office type chairs in the hallway with a lady sitting on one of them knitting.  So I walked in and there was someone there meeting with some people for their appointment.  She told me to just wait in the hallway.  (It would have been nice if there had been a sign or something on the door.)  I was quite early for my appointment because when they set it up for me they wanted to make sure that I had plenty of time to get my infusion and then make it over.  Luckily they were able to take me about an hour early so I didn't have to waste too much time there.  The scan was pretty quick and easy.  Since I am post menopausal now this may be something that I will have to have done periodically.

I just read the other day that Pierce Brosnan's step-daughter Charlotte just passed away from a 3-year battle with ovarian cancer - I'm not sure if she was 41 or 42 - it depends what source you read.  Apparently her mother and grandmother also died of ovarian at young ages - her mother was 43 and married to Pierce Brosnan at the time.  The family has the BRCA-1 mutation that I also have.  I wish that I could find out more about her battle with the cancer, but so far I haven't been able to find anything other than statements to the fact that she has fought it for 3 years.  That's one reason why I am keeping this blog in the hopes that it might help someone else down the road that is going through a similar battle with ovarian cancer.  It is sad to hear news like this though and I hope that their family is able to find peace.  She leaves behind a husband and two young children.

Today I met with my surgeon for my 4-month follow-up appointment.  She asked how the Avastin infusions were going and I asked what her thoughts are on the drug.  She said that in studies that she has seen just recently, patients that stay on the Avastin seem to do better and keep the cancer away longer than those not on it.  She said that her feelings are that with how advanced my cancer was that she would probably stay on the Avastin if she were in my shoes.  I also asked about my CA-125 count going up and she said that that is within the scope of the accuracy of the test.  She said that if the number was doubling each time then that would raise red flags to her, but with it being just a couple of points here and there she says that isn't much to worry about.  Other than that everything appears to be fine - although my blood pressure is always high there when they measure it...

I had a little bit of a problem with the office and this appointment which I scheduled 4 months ago.  Apparently they doubled booked the time slot that I was in so they tried calling a week ago to have me move it to Wednesday instead but I said I couldn't because I had family in town.  Well a couple of days after that they called to confirm my appointment and apparently moved my appointment back a half hour without telling me.  I said that I couldn't meet a half hour later because I had a appointment for one of my kids at Primary Children's Medical Center right after my appointment so if they were going to keep me at 9:30 then I would have to reschedule for another day.  Well, I guess they got something worked out because they called a day or two later to confirm my appointment for 9:00.  Talk about frustrating!!