Went online to find out my latest CA-125 number and it has now dropped to single digits! My count is at 9 right now!

Met with the nurse practitioner today because my doctor is out of town. I haven't seen the NP in several months - I was beginning to wonder if she still worked there! Everything looked fine with my labs. The NP mentioned that another similar drug to the one that I am on was just FDA approved for treatment of BRCA-1 patients. I need to ask next time if that means I could go off of the study and start taking this new drug. Then maybe I could stop having scans so frequently. It would be worth asking about at least.

Got a call from the study coordinator today with some good news - the doctor said it was an early Christmas present for us.  They just got word from the drug company that is conducting the study that I am on and they have finally agreed to pay for some of my CT scans - we should only have to pay for about every 3rd one - which will save us a lot of money.  While I am still not crazy about having to have the scans every 8 weeks, this will help some money-wise at least.

Checked my CA-125 number online today and it is still at 10!

I got a message from my doctor just before Thanksgiving that my CT scan looked good. I just had a routine 4 week visit today with lab work and then had my drug dispensed - that is the part of my visit that takes the longest. The pharmacy has to wait until the labs come back and then the doctor has to sign the order for the drug and then I have to wait around until they fill it and the study coordinator brings the medication to me.  My breast MRI also looked clear which is good news too.