Monday, October 19, 2015
Met with my new surgeon today (since my original surgeon moved over the summer). She was nice. She was very impressed with how nicely my incision has healed. She said that she doesn't think she has ever seen one look so nice! I am actually surprised as well how much my scar has faded. I will try and take a picture that I can post on here when I remember. :) The appointment went fine and everything looks good as far as they can tell.
Tuesday, October 13, 2015
Monday, October 12, 2015
My appointment for this time around was scheduled for a Monday so that we could have it the same day that I met with my new surgeon. As it turns out though, whoever scheduled my appointment with the surgeon created an appointment at a bogus time that wasn't in the system and they had to call me and reschedule it for the following week...
Since it had been almost 5 weeks since my last appointment, the nurse had a little bit of trouble getting my port to work correctly... (I actually think that the nurse was a little too hesitant at sticking the needle into it and didn't get it in good enough. We will have to see though - that is just my personal observation from someone who has had her port accessed at least once every 4 weeks for the past 4 years...) Once she got the port working, it was much slower at drawing the blood out than I ever remember it taking. Hopefully it was just a one time thing - we will find out in 4 weeks when I have my next CT scan.
They also didn't have all of my normal labs listed to draw today so I made them call the nurse who works with my doctor to get them ordered. Again, since I have been doing this for a while now, I pretty much know the routine and try to make sure they get it right so I don't have to have my port re-accessed - which they've had to do before.
After all of that, everything went fine with my appointment. The study coordinator who I have been working with for a little while now apparently just recently took a new position up at Huntsman so there was a new coordinator there today. She seemed nice though - it will just take her a little while to get up to speed on everything that she has responsibility over now - she was the previous coordinator's assistant.
After my appointment I had an interview with someone who is conducting a study of young cancer patients and how they can best be helped and supported during the cancer treatments. It was interesting and made me think a lot about what I have gone through up to this point and maybe what would have helped me more while I was going through my initial diagnosis and early treatments.
Since it had been almost 5 weeks since my last appointment, the nurse had a little bit of trouble getting my port to work correctly... (I actually think that the nurse was a little too hesitant at sticking the needle into it and didn't get it in good enough. We will have to see though - that is just my personal observation from someone who has had her port accessed at least once every 4 weeks for the past 4 years...) Once she got the port working, it was much slower at drawing the blood out than I ever remember it taking. Hopefully it was just a one time thing - we will find out in 4 weeks when I have my next CT scan.
They also didn't have all of my normal labs listed to draw today so I made them call the nurse who works with my doctor to get them ordered. Again, since I have been doing this for a while now, I pretty much know the routine and try to make sure they get it right so I don't have to have my port re-accessed - which they've had to do before.
After all of that, everything went fine with my appointment. The study coordinator who I have been working with for a little while now apparently just recently took a new position up at Huntsman so there was a new coordinator there today. She seemed nice though - it will just take her a little while to get up to speed on everything that she has responsibility over now - she was the previous coordinator's assistant.
After my appointment I had an interview with someone who is conducting a study of young cancer patients and how they can best be helped and supported during the cancer treatments. It was interesting and made me think a lot about what I have gone through up to this point and maybe what would have helped me more while I was going through my initial diagnosis and early treatments.
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