DH and I went to Luke's class play this morning and then to meet with the surgeon this afternoon. She spent quite a bit of time talking to us about my upcoming surgery and answered any questions we had. She also did an exam on me and is very pleased with how mobile everything feels and how everything has shrunk considerably. She is very confident that the surgery will be successful and that they will be able to remove all the cancer that is visible and give me a good chance of a successful recovery. Her only concern is the tumor (or lesion) on my liver. It is in just about the worst spot it could be as far as being able to get to it. It is on the backside of the liver in the upper right corner. The tumor there has shrunk to more than half of its original size and she is confident that if they can get to it it will be fairly easy to resect that portion of it. They have been in contact with a liver transplant specialist and are trying to arrange it so that she can be there on hand to help my surgeon with the liver part of the surgery to ensure that we have a successful outcome there.
The not so good news is that this is going to be a huge vertical incision - from the top of the pubic bone all the way up to my sternum! The way she was talking it sounds like the absolute earliest she would think I might be home afterwards would be Christmas day. Everything will depend on how quickly I am able to get up and moving after the surgery and that I am able to manage the pain enough that I can manage at home with prescription medications. She emphasized that each person is different and it is very individual on how quickly one is able to recover from a surgery this major. The surgery itself will probably take about 3-4 hours! I will be first on the schedule which probably means we will have to be at the hospital around 6:00 in the morning again - I will find out next Tuesday when I call in to get my instructions. I also get to eat (drink) a clear liquid only diet the day before the surgery to make sure that my bowels are all cleared out and take a bottle of Miralax and some capsules of Dulcolax (both laxatives). Fun, fun, fun!
Oh, my tooth/jaw if feeling somewhat better today. I didn't mention in my last post that one of the reasons I am concerned about the pain is that it is in the spot where I have my implant and where I had my oral surgery (apicoectomy) several years ago, so it has been a problem spot in the past.
My goal right now is to get everything for Christmas taken care of before the 21st - including all the wrapping so that it will just be a matter of setting everything out once I get home from the hospital. Right now I am almost done with all of the shopping - just a few sibling gifts that I need to take the kids with me to help pick out.
Tuesday, December 13, 2011
Monday, December 12, 2011
Mailed off my Christmas packages this morning! That felt good! This is by far the earliest I have ever done that! There were just two people in line at the Post Office when I got there.
This afternoon I had to drive the Jordan Youth Symphony carpool for M&M and 4 other kids from her school. I drive them every other week. Today I wore my wig and a couple of the girls commented on my new hairdo. One of the girls asked if I got my haircut. I wasn't quite sure how to respond to that so I said that it was a new hairstyle. Then on the way home two of the kids (siblings that live a couple of doors away from us) were asking M&M about my new hairstyle. She said she was trying to explain to them so that they could figure it out for themselves, but they didn't quite get what she was saying until she came out and told them that it was a wig! She got a good laugh out of that! She said she was trying to explain that I was going through chemo for my cancer treatment and that hair usually falls out... Then I got my hair cut, but my hair has still been falling out... It was funny to hear the story afterwards. Emily's first comment when she walked in the door from being dropped off was, "Well Mom, your wig works!"
I've been battling a sore tooth/jaw that started hurting on Saturday. I hope it is not something serious that I am going to have to go into the dentist for. Hopefully it is just a slight irritation or infection that has been made worse by my low blood counts. I am monitoring my temperature and then trying to take better care in my brushing and flossing and mouth rinse. I'm also trying an essential oil called Clove on the area. If it starts feeling worse over the next day or two I should probably go in to see the dentist... Other than that and a headache that comes and goes, I feel fine.
As a side note - I have been participating in another clinical trial where I call into a phone helpline each day to answer questions with an automated system on the side effects of my chemo treatments. Sometimes there are some helpful tips that they give during the call to help deal with the effects of the chemo. Usually around this time in the calls they start advising you to not floss your teeth for about a week to minimize the chances of getting a cut in your mouth that will then get infected by bacteria from food or other causes. I just think that's an interesting piece of advice - to not floss your teeth because it could cause an infection instead of it helping to clean out the bacteria. I think with this recent mouth problem it has been me notflossing my teeth that has caused the problem...
This afternoon I had to drive the Jordan Youth Symphony carpool for M&M and 4 other kids from her school. I drive them every other week. Today I wore my wig and a couple of the girls commented on my new hairdo. One of the girls asked if I got my haircut. I wasn't quite sure how to respond to that so I said that it was a new hairstyle. Then on the way home two of the kids (siblings that live a couple of doors away from us) were asking M&M about my new hairstyle. She said she was trying to explain to them so that they could figure it out for themselves, but they didn't quite get what she was saying until she came out and told them that it was a wig! She got a good laugh out of that! She said she was trying to explain that I was going through chemo for my cancer treatment and that hair usually falls out... Then I got my hair cut, but my hair has still been falling out... It was funny to hear the story afterwards. Emily's first comment when she walked in the door from being dropped off was, "Well Mom, your wig works!"
I've been battling a sore tooth/jaw that started hurting on Saturday. I hope it is not something serious that I am going to have to go into the dentist for. Hopefully it is just a slight irritation or infection that has been made worse by my low blood counts. I am monitoring my temperature and then trying to take better care in my brushing and flossing and mouth rinse. I'm also trying an essential oil called Clove on the area. If it starts feeling worse over the next day or two I should probably go in to see the dentist... Other than that and a headache that comes and goes, I feel fine.
As a side note - I have been participating in another clinical trial where I call into a phone helpline each day to answer questions with an automated system on the side effects of my chemo treatments. Sometimes there are some helpful tips that they give during the call to help deal with the effects of the chemo. Usually around this time in the calls they start advising you to not floss your teeth for about a week to minimize the chances of getting a cut in your mouth that will then get infected by bacteria from food or other causes. I just think that's an interesting piece of advice - to not floss your teeth because it could cause an infection instead of it helping to clean out the bacteria. I think with this recent mouth problem it has been me notflossing my teeth that has caused the problem...
Labels:
wig
Sunday, December 11, 2011
This morning MJ and I just went to Sacrament Meeting again. Unfortunately MJ was in a bad mood this morning and DH ended up walking home with her at the end of Sacrament Meeting because she was out of control. The kids and I searched around for them after church and then concluded that they must have gone home already. We facetimed with DH's mom this evening. It's been a while since we've talked with her. We stayed up way too late though!
Labels:
church
Saturday, December 10, 2011
This morning was our ward Christmas party. It was a ward breakfast/activity this year. DH took all the older kids and I stayed home with MJ.
This evening DH and I went to the Sounds of the Season concert. I wore my wig out in public again (actually I have several times this week - just nowhere where I would run into someone that knows me). When DH and I got to the high school, there standing right at the doors to the auditorium was our bishop and the husband of another person from our ward (both of their wives are in the choir). I felt totally embarrassed and not ready to run into people that I know! We shook hands with them and then I quickly ducked into the auditorium to find a seat before the concert started. Then towards the end of the program I noticed a family from our ward sitting a few rows behind us in our section. We ended up talking to them afterwards for a few minutes and then we quickly left the building. I really would have liked to have gone up and said "hi" to everyone in the orchestra & choir that I know, but I am trying to limit the amount of face-to-face contact that I have with people right now. I am at the beginning of the low-point of my white and red blood cell counts and would like to avoid as many germs as possible. My parents who sing in the choir ended up coming to our house afterwards to visit for a few minutes and to say "hi" to the kids.
This evening DH and I went to the Sounds of the Season concert. I wore my wig out in public again (actually I have several times this week - just nowhere where I would run into someone that knows me). When DH and I got to the high school, there standing right at the doors to the auditorium was our bishop and the husband of another person from our ward (both of their wives are in the choir). I felt totally embarrassed and not ready to run into people that I know! We shook hands with them and then I quickly ducked into the auditorium to find a seat before the concert started. Then towards the end of the program I noticed a family from our ward sitting a few rows behind us in our section. We ended up talking to them afterwards for a few minutes and then we quickly left the building. I really would have liked to have gone up and said "hi" to everyone in the orchestra & choir that I know, but I am trying to limit the amount of face-to-face contact that I have with people right now. I am at the beginning of the low-point of my white and red blood cell counts and would like to avoid as many germs as possible. My parents who sing in the choir ended up coming to our house afterwards to visit for a few minutes and to say "hi" to the kids.
Labels:
church
Friday, December 9, 2011
Apparently the nurse-practitioner from my oncologist's office called yesterday and left a message which I didn't notice until today. She said that the CT scans looked really good and that the tumors have shrunk quite a bit which is very encouraging. That means that the chemo is working and my body is responding very well to it.
Labels:
Huntsman
Thursday, December 8, 2011
Yesterday I wore my wig out in public for the first time. I've been wearing it around the house a little to get used to it and to try and style it more the way I want. Then yesterday I had to go to BestBuy to pick up something and then run a few other errands, so I decided to try out my wig. When I got to the store and got out of the car to go around and get the kids out, I saw someone from my neighborhood who had also just gotten out of their car and was walking towards the store. I saw her and looked straight at her to say "hi" to her, but she didn't even look at me or acknowledge me at all. I just started chuckling to myself because I think the wig is a very different look for me and this lady did not recognize me at all!
My CT scan was scheduled for later that afternoon so I found someone that could watch the two little ones for me for about 30 minutes until M&M got home from school. MJ was quite sad when I left her. Hopefully one of these days she won't cry when I have to leave her at someone's house... I had to get my blood drawn first for my lab work and then they left my port accessed as we went to another part of the building for my CT scan. I had to drink the Barium drink again and I had a hard time getting it down this time. Nasty flavor and aftertaste... I had the mixed berry flavor again, but it just tasted gross this time around. It was a pretty quick procedure - I think I was away from DH for less than 10 minutes. Afterwards we were supposed to go over to the U of U Hospital Imaging department to pick up a copy of the CT scan to take to my surgeon's office. First I had to go back downstairs to have my port de-accessed and then it took us several minutes to get over to the University Hospital and apparently the imaging office closes at 5:00 which is when we got there and there was no one around to help us. Luckily my surgeon was just able to have her office call over there to get a copy of the scan couriered to their office before my appointment the following Tuesday. We had dinner brought over to us that evening again which helped a lot since we didn't get home until around 6:00 again.
My CT scan was scheduled for later that afternoon so I found someone that could watch the two little ones for me for about 30 minutes until M&M got home from school. MJ was quite sad when I left her. Hopefully one of these days she won't cry when I have to leave her at someone's house... I had to get my blood drawn first for my lab work and then they left my port accessed as we went to another part of the building for my CT scan. I had to drink the Barium drink again and I had a hard time getting it down this time. Nasty flavor and aftertaste... I had the mixed berry flavor again, but it just tasted gross this time around. It was a pretty quick procedure - I think I was away from DH for less than 10 minutes. Afterwards we were supposed to go over to the U of U Hospital Imaging department to pick up a copy of the CT scan to take to my surgeon's office. First I had to go back downstairs to have my port de-accessed and then it took us several minutes to get over to the University Hospital and apparently the imaging office closes at 5:00 which is when we got there and there was no one around to help us. Luckily my surgeon was just able to have her office call over there to get a copy of the scan couriered to their office before my appointment the following Tuesday. We had dinner brought over to us that evening again which helped a lot since we didn't get home until around 6:00 again.
Okay, I need the rumor mill to please stop... I've had several people approach me now saying that they have heard that I have been having a bad week and that is not true. So, please know that I am not having a bad week, in fact today I feel perfectly fine and I would appreciate it if the rumors about my condition would stop. I'm not sure who is passing on this rumor, but if it was from reading this blog then you have read more into it than I have written there.
Also please know that my family is very capable of handling most things on our own and that my kids are old enough to help out around the house and with each other. If I need help, I will ask for it! Even though I don't ask for help a lot, I do know my limits and will ask for it when it is needed! Thank you!
Also please know that my family is very capable of handling most things on our own and that my kids are old enough to help out around the house and with each other. If I need help, I will ask for it! Even though I don't ask for help a lot, I do know my limits and will ask for it when it is needed! Thank you!
Tuesday, December 6, 2011
Side effects so far from chemo treatment #3:
- Super tired - Since Saturday I have just wanted to lay around not doing too much of anything. My sleep has been good some nights and poor other nights. Saturday morning I went to the two baptisms for our ward and played some prelude & interlude music for it. It's been a while since I've played like that. That night I didn't sleep too well with Kay waking up partway through the night and then her waking up MJ when I tried to take her back to bed. My husband is also battling some head congestion so his sleep has been a little more noisy than usual - keeping me up in the middle of the night. I ended up sending the family to church without me and then I joined them for Sacrament Meeting.
- Lack of taste - Quite a few foods just have no taste to me the first week or so after my chemo. Two of the foods that have the most altered taste that I have noticed are yogurt and chocolate. Yogurt just tastes nasty to me and chocolate has hardly any taste at all. On Sunday I made a potato/cheese soup for dinner that the whole family loves and I sat down and ate a bite and could hardly taste anything - it was very disappointing!
- Tingling - The tingling in my fingers and feet hasn't seemed to be as bad so far this time around. I am crossing my fingers that it will not get any worse.
- Headache - My head has been absolutely pounding these last couple of days. It makes it hard to think clearly and I find myself super short-tempered all day long - especially with the kids.
Yesterday I put my wig on after my shower in the morning and came down to show Kay and MJ. Kay immediately saw me and said, "Whoa! I like that on you." MJ just sat there staring at me for the longest time trying to figure out what was going on! I think the wig looks fine. It is just a very different look for me - not my usual style so it will take a little bit of getting used to. I figure that I need to start feeling comfortable wearing it around the house or I will never feel comfortable enough to wear it outside of the house. I think I want to take a little bit of time to try styling it a little more to my liking, but so far I haven't had the energy to do that.
Sickness is abounding in our household! DH, MJ, M&M and Blondie all have coughs/colds and I think we have had some type of stomach virus going around the house as well. DH was up for a good chunk of the night last night with some stomach problems and MJ and Kay have had a little bit of something too - luckily no throwing up... My bowels have not been completely happy either, but I'm not sure if it is the same thing or side-effects from my chemo. MJ has been super whiny today and I hope that she starts to feel better soon! I don't have a lot of energy right now to deal with sick kids...
- Super tired - Since Saturday I have just wanted to lay around not doing too much of anything. My sleep has been good some nights and poor other nights. Saturday morning I went to the two baptisms for our ward and played some prelude & interlude music for it. It's been a while since I've played like that. That night I didn't sleep too well with Kay waking up partway through the night and then her waking up MJ when I tried to take her back to bed. My husband is also battling some head congestion so his sleep has been a little more noisy than usual - keeping me up in the middle of the night. I ended up sending the family to church without me and then I joined them for Sacrament Meeting.
- Lack of taste - Quite a few foods just have no taste to me the first week or so after my chemo. Two of the foods that have the most altered taste that I have noticed are yogurt and chocolate. Yogurt just tastes nasty to me and chocolate has hardly any taste at all. On Sunday I made a potato/cheese soup for dinner that the whole family loves and I sat down and ate a bite and could hardly taste anything - it was very disappointing!
- Tingling - The tingling in my fingers and feet hasn't seemed to be as bad so far this time around. I am crossing my fingers that it will not get any worse.
- Headache - My head has been absolutely pounding these last couple of days. It makes it hard to think clearly and I find myself super short-tempered all day long - especially with the kids.
Yesterday I put my wig on after my shower in the morning and came down to show Kay and MJ. Kay immediately saw me and said, "Whoa! I like that on you." MJ just sat there staring at me for the longest time trying to figure out what was going on! I think the wig looks fine. It is just a very different look for me - not my usual style so it will take a little bit of getting used to. I figure that I need to start feeling comfortable wearing it around the house or I will never feel comfortable enough to wear it outside of the house. I think I want to take a little bit of time to try styling it a little more to my liking, but so far I haven't had the energy to do that.
Sickness is abounding in our household! DH, MJ, M&M and Blondie all have coughs/colds and I think we have had some type of stomach virus going around the house as well. DH was up for a good chunk of the night last night with some stomach problems and MJ and Kay have had a little bit of something too - luckily no throwing up... My bowels have not been completely happy either, but I'm not sure if it is the same thing or side-effects from my chemo. MJ has been super whiny today and I hope that she starts to feel better soon! I don't have a lot of energy right now to deal with sick kids...
Labels:
church,
side-effects
Thursday, December 1, 2011
I actually felt pretty good most of the day today. I got up and took the kids to Parents & Pastries before school and then spent the day changing bed sheets and doing laundry - a never ending job in a family of 8! I did crash for a little while in the afternoon, but other than that really no problems so far after my third chemo treatment.
Wednesday, November 30, 2011
Chemo treatment #3 today. I had an appointment for lab work and to meet with the Dr. beforehand, and it was super busy and it took forever to get through the appointment. Because of that my chemo appointment started really late and it felt like we were there forever! Luckily we didn't have much traffic on the ride home, but we didn't get back until about 6:45 that evening (and we left around 9:15 in the morning)... My parents were able to tag team it during the day so someone was always here with the kids.
The only reaction I had once again was to the Benadryl - within just a few minutes of it entering my bloodstream I can feel it go straight to my head and make me a little woozy and super tired. It's definitely a weird feeling!
The nurse practitioner couldn't feel anything of my tumor and they are confident with the upcoming surgery that the surgeon will be successful in getting the bulk of the cancer out of me. They are also hopeful that the nerve damage in my fingers and feet will have some time to repair itself between this third chemo treatment and when I start up again after the surgery - probably 5-6 weeks after.
My main goal now is to get everything bought and ready for Christmas before my surgery on the 21st! Wish me luck!
The only reaction I had once again was to the Benadryl - within just a few minutes of it entering my bloodstream I can feel it go straight to my head and make me a little woozy and super tired. It's definitely a weird feeling!
The nurse practitioner couldn't feel anything of my tumor and they are confident with the upcoming surgery that the surgeon will be successful in getting the bulk of the cancer out of me. They are also hopeful that the nerve damage in my fingers and feet will have some time to repair itself between this third chemo treatment and when I start up again after the surgery - probably 5-6 weeks after.
My main goal now is to get everything bought and ready for Christmas before my surgery on the 21st! Wish me luck!
Monday, November 28, 2011
Sorry it's been over a week since I last posted here! There hasn't really been a lot to post about. If it wasn't for my hair loss and a little bit of tingling in my finger and being a bit more tired than usual, I wouldn't even know that I was sick... Overall I feel pretty fine and normal and it's hard to believe that I really have cancer.
Last week was pretty eventful with the Thanksgiving holiday. Two of my brothers and their families came from out of town to visit. I picked up my younger brother and his family from the airport Tuesday evening and fed them dinner at my house before taking them over to my parents' house. We all met up for dinner at my parents' house on Thanksgiving day. Then on Friday some of us went to the dinosaur museum at Thanksgiving Point and then we all met up for dinner again that evening. M&M and I made a bunch of treats to take over with us for dessert. On Saturday my family spent the day cleaning and putting up our Christmas tree and decorations. Really the only thing left to do is put the lights up on the outside of the house.
I went to all of church on Sunday. People ask me all the time how I am doing and the only way I know to respond is that I am feeling fine. That seems kind of weird considering the fact that I have cancer, but really I just feel fine. I had a primary meeting after church and then later on in the afternoon we went over to my parents' house for dinner again.
I got a call from nurse Stephanie this afternoon informing me that my blood counts were pretty low last time. She said to give them a call if I get a fever and to wash my hands often and stay away from sick people. I got off the phone and thought, "Yeah, but that was almost a week ago already." Hopefully my numbers will be fine for Wednesday so that we don't have to postpone my next chemo treatment.
I still have a little fringe of hair so I just wear hats everywhere. DH would like to shave it because he doesn't like how it looks without a hat, but I think it makes the hats look more normal. My guess is that after my next chemo treatment the rest of it will fall out.
Last week was pretty eventful with the Thanksgiving holiday. Two of my brothers and their families came from out of town to visit. I picked up my younger brother and his family from the airport Tuesday evening and fed them dinner at my house before taking them over to my parents' house. We all met up for dinner at my parents' house on Thanksgiving day. Then on Friday some of us went to the dinosaur museum at Thanksgiving Point and then we all met up for dinner again that evening. M&M and I made a bunch of treats to take over with us for dessert. On Saturday my family spent the day cleaning and putting up our Christmas tree and decorations. Really the only thing left to do is put the lights up on the outside of the house.
I went to all of church on Sunday. People ask me all the time how I am doing and the only way I know to respond is that I am feeling fine. That seems kind of weird considering the fact that I have cancer, but really I just feel fine. I had a primary meeting after church and then later on in the afternoon we went over to my parents' house for dinner again.
I got a call from nurse Stephanie this afternoon informing me that my blood counts were pretty low last time. She said to give them a call if I get a fever and to wash my hands often and stay away from sick people. I got off the phone and thought, "Yeah, but that was almost a week ago already." Hopefully my numbers will be fine for Wednesday so that we don't have to postpone my next chemo treatment.
I still have a little fringe of hair so I just wear hats everywhere. DH would like to shave it because he doesn't like how it looks without a hat, but I think it makes the hats look more normal. My guess is that after my next chemo treatment the rest of it will fall out.
Labels:
holidays
Sunday, November 20, 2011
Yesterday I spent the day doing some cleaning/organizing and getting the laundry put away. I took a couple of the kids to the library and then a quick stop at the grocery store. I had a hankering for some pumpkin bars with cream cheese frosting so M&M and I made the bars yesterday and then frosted them today. Delicious!!
I didn't sleep great last night for some reason. I wish I could just get a decent night's sleep and not keep waking up 2 or 3 times a night... I had a scout meeting before church this morning and then ended up going to the whole 3 hour block of church - even though I wasn't planning on doing so at first. Right now my immune system is supposed to be at its lowest point so I need to be really careful around people. They say around day 8-14 from my chemo treatment is when my white blood cell count will typically be at its lowest. It's been hard though because that is around the time when I really start feeling better and have more energy and yet I'm supposed to avoid crowds and people that are sick (which is going to be hard as we go into winter/sick season here). I've been battling a headache all day. I'm not sure if it is from the chemo or from not having slept well last night.
I just have a very thin fringe of hair at this point. I still look okay with a hat, but it is looking very thin and wispy. I have a few comb-over type strands on the top of my head and then a little bit on the sides. My kids think it looks like an old man. Unfortunately my scalp is very sensitive with pimple-like bumps on a good portion of it - not very comfortable at all - and it itches...
I didn't sleep great last night for some reason. I wish I could just get a decent night's sleep and not keep waking up 2 or 3 times a night... I had a scout meeting before church this morning and then ended up going to the whole 3 hour block of church - even though I wasn't planning on doing so at first. Right now my immune system is supposed to be at its lowest point so I need to be really careful around people. They say around day 8-14 from my chemo treatment is when my white blood cell count will typically be at its lowest. It's been hard though because that is around the time when I really start feeling better and have more energy and yet I'm supposed to avoid crowds and people that are sick (which is going to be hard as we go into winter/sick season here). I've been battling a headache all day. I'm not sure if it is from the chemo or from not having slept well last night.
I just have a very thin fringe of hair at this point. I still look okay with a hat, but it is looking very thin and wispy. I have a few comb-over type strands on the top of my head and then a little bit on the sides. My kids think it looks like an old man. Unfortunately my scalp is very sensitive with pimple-like bumps on a good portion of it - not very comfortable at all - and it itches...
Labels:
side-effects
Friday, November 18, 2011
I'm still having problems regulating my body temperature. It most likely has something to do with the hormone shot to shut down my ovaries - it's supposed to be like going through menopause. My hands and feet are particularly sensitive, and it doesn't help that the tips of my fingers are tingly. It feels like I have poor circulation in them.
I still have a little bit of hair and I'm surprised that I look as normal as I do with a hat on - without it is a different story. My kids are always curious to see how I am looking so I took my hat off for them the other day and showed them and just about all of them responded with, "Ewww, gross!" Nice feeling... I think my husband is dying to shave my head so maybe we will do it this weekend. I'm having a hard time letting go of the last of it though especially since it looks fine with my hats. My scalp is still super sensitive and itchy.
I finally found a hat to sleep in at night! A friend from the ward stopped by on Thursday and dropped off a hat that she had bought for me at Huntsman and it is perfect for me for sleeping in. It is a soft knit that comes down a little lower and has some elastic in the back so it fits a little better and doesn't fall off of me when I turn over in bed.
Today I made dinner for the first time since my last chemo treatment. We have had so many kind, generous people that have wanted to bring meals since my last treatment that we have had tons of food. I think the kids miss some of our regular meals so I since I was feeling fine I decided to make one of our family meals that we haven't had in a while. I had great responses from the kids when they saw it too!
I still have a little bit of hair and I'm surprised that I look as normal as I do with a hat on - without it is a different story. My kids are always curious to see how I am looking so I took my hat off for them the other day and showed them and just about all of them responded with, "Ewww, gross!" Nice feeling... I think my husband is dying to shave my head so maybe we will do it this weekend. I'm having a hard time letting go of the last of it though especially since it looks fine with my hats. My scalp is still super sensitive and itchy.
I finally found a hat to sleep in at night! A friend from the ward stopped by on Thursday and dropped off a hat that she had bought for me at Huntsman and it is perfect for me for sleeping in. It is a soft knit that comes down a little lower and has some elastic in the back so it fits a little better and doesn't fall off of me when I turn over in bed.
Today I made dinner for the first time since my last chemo treatment. We have had so many kind, generous people that have wanted to bring meals since my last treatment that we have had tons of food. I think the kids miss some of our regular meals so I since I was feeling fine I decided to make one of our family meals that we haven't had in a while. I had great responses from the kids when they saw it too!
Labels:
hair
Wednesday, November 16, 2011
Well, I threw up last night for the first time since starting chemo. It was weird because I woke up around 3 in the morning and felt just fine. I used the bathroom and then went downstairs to get something to eat (I have been feeling a little nauseous lately if my stomach is empty). After I came back up to bed I was laying there and the furnace was on and I started feeling really hot and sick, but I didn't want to get up. Finally I decided I better hurry to the bathroom. I took one of my anti-nausea pills and after doing some business for a minute started feeling like I was going to throw up. Luckily I remembered that I had a cleaning bucket under the sink and managed to grab it in time to throw up in it... I felt much better after a few minutes and was able to go back to bed feeling fine.
DH stayed home from work today to get some yard work done. He was hoping to do it on the weekend, but for the second weekend in a row we are supposed to get a cold front with snow coming through and the work needs to be done before winter sets in. My dad came over and worked with DH while my mom and I and the girls went to Huntsman for my blood work. It was supposed to be just a quick blood draw again and then a quick injection so we thought the girls might have fun with the diversion. Well, as I am learning with the clinic I go to, nothing seems to go quickly or effortlessly... When I checked in the lady said that she would quickly get the order called in so my injection would be ready to go. Then they called me back and I sat waiting for several minutes before they took me in to draw my blood. (The nurses that draw the blood said it had been a super busy morning already. They had had as many people so far that day as they had all day the day before.) When the lady was getting the order ready for the blood draw she thought that they had the wrong test ordered so she called my nurse, Stephanie, and she said she would look into it. A few minutes later she called back and said that the test order was wrong and she would be by with the correct order. So they finally got the blood order right, then the nurse said that they would be by to take my blood pressure and then I could go. I told the nurse that I was supposed to have an injection today as well - she said she'd look into it. After probably at least a half hour of just sitting there, they finally got things sorted out and got the injection for me and administered it to me. (I heard that there was a little bit of hassle either from the pharmacy or the insurance because I am supposed to get the injection every 28 days and it had only been 27 days...) I was probably back in the office for almost an hour during which time my mom had to entertain MJ and Kay by wandering the halls with them and feeding them some snacks that she found in the diaper bag...
After we came home and ate lunch I took MJ outside to play while I sat in the sun and watched DH finish up his work. It was a little on the cold side, but the sun felt really good and MJ loved running around out there.
The rest of the day I really fluctuated between feeling good and not feeling good. My stomach was upset a little off and on and I had a hard time keeping a constant body temperature. One minute I would be freezing and then a half hour later I was dying of the heat. My feet and legs have been find today, but my fingers have been a little tingly lately. It hasn't affected me too much, but it is just kind of annoying. I've also had a bad headache off and on throughout the day. And wow my scalp hurts today - kind of a combination of itching and just general discomfort - especially when I touch it.
A couple of neighbors stopped by with dinner and one of the activity day girl groups stopped by with some cute turkey cupcakes they had made.
DH stayed home from work today to get some yard work done. He was hoping to do it on the weekend, but for the second weekend in a row we are supposed to get a cold front with snow coming through and the work needs to be done before winter sets in. My dad came over and worked with DH while my mom and I and the girls went to Huntsman for my blood work. It was supposed to be just a quick blood draw again and then a quick injection so we thought the girls might have fun with the diversion. Well, as I am learning with the clinic I go to, nothing seems to go quickly or effortlessly... When I checked in the lady said that she would quickly get the order called in so my injection would be ready to go. Then they called me back and I sat waiting for several minutes before they took me in to draw my blood. (The nurses that draw the blood said it had been a super busy morning already. They had had as many people so far that day as they had all day the day before.) When the lady was getting the order ready for the blood draw she thought that they had the wrong test ordered so she called my nurse, Stephanie, and she said she would look into it. A few minutes later she called back and said that the test order was wrong and she would be by with the correct order. So they finally got the blood order right, then the nurse said that they would be by to take my blood pressure and then I could go. I told the nurse that I was supposed to have an injection today as well - she said she'd look into it. After probably at least a half hour of just sitting there, they finally got things sorted out and got the injection for me and administered it to me. (I heard that there was a little bit of hassle either from the pharmacy or the insurance because I am supposed to get the injection every 28 days and it had only been 27 days...) I was probably back in the office for almost an hour during which time my mom had to entertain MJ and Kay by wandering the halls with them and feeding them some snacks that she found in the diaper bag...
After we came home and ate lunch I took MJ outside to play while I sat in the sun and watched DH finish up his work. It was a little on the cold side, but the sun felt really good and MJ loved running around out there.
The rest of the day I really fluctuated between feeling good and not feeling good. My stomach was upset a little off and on and I had a hard time keeping a constant body temperature. One minute I would be freezing and then a half hour later I was dying of the heat. My feet and legs have been find today, but my fingers have been a little tingly lately. It hasn't affected me too much, but it is just kind of annoying. I've also had a bad headache off and on throughout the day. And wow my scalp hurts today - kind of a combination of itching and just general discomfort - especially when I touch it.
A couple of neighbors stopped by with dinner and one of the activity day girl groups stopped by with some cute turkey cupcakes they had made.
Labels:
side-effects
Tuesday, November 15, 2011
Yesterday was an okay day. More than anything I was just tired - not many other side effects except the tingling in the hands and feet. We had an excellent meal brought to us by a family in the ward.
This morning I took the girls over to a neighbor's house while I ran to the store. Unfortunately I think MJ cried almost the whole time I was gone. She's been a little under the weather lately because she is cutting her first set of molars.
Well, today I got my first Christmas present - a surgery date scheduled for December 21st... My choices were December 21st or January 4th, and with insurance rolling over to a new year in January, it makes more sense for us financially to have the surgery before the new year. My only wish now is that I will be out of the hospital by Christmas. On the other side it does give me more time than I initially thought I would have to get things ready for Christmas. I was initially thinking that the surgery would be the first or second week of December.
Tonight was pack meeting and Luke got his Webelos award and also his Arrow of Light. I'm grateful for the excellent Webelos leaders in the ward that have helped him earn these!
This morning I took the girls over to a neighbor's house while I ran to the store. Unfortunately I think MJ cried almost the whole time I was gone. She's been a little under the weather lately because she is cutting her first set of molars.
Well, today I got my first Christmas present - a surgery date scheduled for December 21st... My choices were December 21st or January 4th, and with insurance rolling over to a new year in January, it makes more sense for us financially to have the surgery before the new year. My only wish now is that I will be out of the hospital by Christmas. On the other side it does give me more time than I initially thought I would have to get things ready for Christmas. I was initially thinking that the surgery would be the first or second week of December.
Tonight was pack meeting and Luke got his Webelos award and also his Arrow of Light. I'm grateful for the excellent Webelos leaders in the ward that have helped him earn these!
Labels:
surgery
Sunday, November 13, 2011
Hair, hair, it's everywhere! If it wasn't for the fact that the little hair I have looks cute when wearing a hat, I think I would have had DH shave it yesterday. My scalp is getting pretty sensitive - especially in the shower and at night. I'm still trying to figure out what is most comfortable for me to wear to bed at night on my head. Because I sleep with a special type of neck pillow, most of the hats are not staying on my head well or are just not comfortable to wear. I finally tried putting on a large head scarf last night and that seemed to work okay. I wonder if I can make myself something that would work better. I think I have some soft knit fabrics down in the storage room.
My bowels are not 100% right now, but at least I am not backed up... I spent a good chunk of the morning yesterday in the bathroom and then slept a good chunk of the afternoon. Our relief society president came over and helped with some cleaning. DH was hoping to work in the yard some, but the weather wasn't cooperating.
This morning I sent the family to church and stayed home with MJ. We went in a little later in time for Sacrament Meeting. I wore a hat there and felt fine with it. I had several compliments on it. I actually feel fine wearing the hats. I don't really feel self-conscious at all about wearing them - except when Kay tried to pull it off of me in Sacrament Meeting because she wanted to see my bald spot! I think that's going to be my biggest problem with the hats and wig - curious kids!
Other than that it was a pretty uneventful Sabbath Day. I've been kind of tired the last couple of days and the nerves in my feet and calves have been acting up a little - tingly and cold at times. My fingertips have the tingling just a little bit but it's not really bothering me at all.
I think I've been a little depressed the last day or two. It happens when I don't feel like I am needed. With everyone trying to come and help us out I feel like my place is being overtaken and that I don't serve a purpose anymore - not the way I like to feel... I like to be able to function normally and do things that I can do. I think it is going to be hard finding a balance point between doing things on my own and accepting the help of others. While I appreciate help from outside, I don't want or need it all the time at this point. Other than being a little tired, I feel like I am able to fully function and I enjoy doing things with my kids and being able to do things around the house. I even don't mind doing laundry and cleaning every now and then!
My bowels are not 100% right now, but at least I am not backed up... I spent a good chunk of the morning yesterday in the bathroom and then slept a good chunk of the afternoon. Our relief society president came over and helped with some cleaning. DH was hoping to work in the yard some, but the weather wasn't cooperating.
This morning I sent the family to church and stayed home with MJ. We went in a little later in time for Sacrament Meeting. I wore a hat there and felt fine with it. I had several compliments on it. I actually feel fine wearing the hats. I don't really feel self-conscious at all about wearing them - except when Kay tried to pull it off of me in Sacrament Meeting because she wanted to see my bald spot! I think that's going to be my biggest problem with the hats and wig - curious kids!
Other than that it was a pretty uneventful Sabbath Day. I've been kind of tired the last couple of days and the nerves in my feet and calves have been acting up a little - tingly and cold at times. My fingertips have the tingling just a little bit but it's not really bothering me at all.
I think I've been a little depressed the last day or two. It happens when I don't feel like I am needed. With everyone trying to come and help us out I feel like my place is being overtaken and that I don't serve a purpose anymore - not the way I like to feel... I like to be able to function normally and do things that I can do. I think it is going to be hard finding a balance point between doing things on my own and accepting the help of others. While I appreciate help from outside, I don't want or need it all the time at this point. Other than being a little tired, I feel like I am able to fully function and I enjoy doing things with my kids and being able to do things around the house. I even don't mind doing laundry and cleaning every now and then!
Friday, November 11, 2011
Tried out my new pillow last night. I think it will take me a couple of nights to get used to it. It's a little bit bigger than my previous one. I got up a couple of times again in the night. I'm trying to find the right combination of pills to take to keep my side effects down to a minimum this time around. So far I seem to be feeling better overall than following my first treatment. The only side effects that I've noticed today is a little bit of tiredness and a little bit of a headache off and on.
I feel like I was pretty productive today. A neighbor watched the girls for me this morning so I could run to the store. After that I took the girls home for lunch and then MJ and I took a little nap on the couch while Kay watched some TV. I was able to do most of the laundry today - now we just need to put it away. I went with DH to a couple of stores this evening and dinner was brought to us by the Stake Primary Presidency. I did have more of an appetite today, although the food still doesn't taste quite right. After dinner the older kids and DH and I stayed up to watch the last Harry Potter movie. I enjoyed it more than the previous one, but the ending seemed quite anti-climatic.
I feel like I was pretty productive today. A neighbor watched the girls for me this morning so I could run to the store. After that I took the girls home for lunch and then MJ and I took a little nap on the couch while Kay watched some TV. I was able to do most of the laundry today - now we just need to put it away. I went with DH to a couple of stores this evening and dinner was brought to us by the Stake Primary Presidency. I did have more of an appetite today, although the food still doesn't taste quite right. After dinner the older kids and DH and I stayed up to watch the last Harry Potter movie. I enjoyed it more than the previous one, but the ending seemed quite anti-climatic.
Thursday, November 10, 2011
I slept okay last night. I kept having to get up to use the bathroom. They pump so many fluids into my body through the whole infusion process that I am constantly having to empty my bladder. Plus I am trying to up my fluid intake so I can try and be proactive in combatting the constipation issues this time around. I feel pretty good so far this morning. It's just taking me a while to get the girls taken care of so I can finally get myself in the shower!
I got a call from my oncology team nurse this morning. (BTW - her name is Stephanie too. I have had several nurses through this whole process that have been named Stephanie. It's been kind of weird.). Anyway, Stephanie called to give me my results from my latest CA-125 test which they did as part of my lab work yesterday. She said that the day before my first chemo treatment the number had jumped up to about 6200 (my initial test number was 5700) and yesterday my reading was 2227! She said that that was a very significant drop after just one chemo treatment and the whole team is very pleased with how well I appear to be responding to the chemo!
Side effects: We discussed my side effects yesterday and what I can do to try and minimize them after my second chemo treatment. My biggest problem last time was the constipation so we discussed starting taking the Senokot right away starting the day of my chemo. So I took some last night before bed. My next biggest side effect has been some tingling and loss of some feeling in my feet. The chemo drugs can affect the nerves and cause peripheral neuropathy. Right now it is not too severe, but it is something that I need to monitor. It kind of came and went off and on with my last treatment and was almost completely gone by yesterday. The nurse practitioner suggested I take some Vitamin B6 and possibly try an arthritis cream that has jalapenos in it and is supposed to help with the circulation and help warm up the feet. So far I haven't noticed it affecting my hands at all so I will keep my fingers crossed! I don't think there is much they can do for the chemo brain side effect - just rest. I was told that having a period after my first shot to shut down my ovaries is normal. Hopefully that will be the last one I will have to deal with. It is a shot that I will be getting monthly though until my surgery takes place.
Wow I lost a ton of hair today in the shower! I have a very obvious bald spot in the very front of my head. I think I will wear a hat if I go out at all today... I'm not quite ready to shave my head yet, but getting close to it. I'm not very excited about losing my hair, even though I am resigned to the fact that it is going to happen. That is one of the most obvious signs that a woman has cancer and is going through chemotherapy. Men have it easier because it is not uncommon to see bald men. Women on the other hand is a different story. My big concern is that I just want to lo normal and not stand out. I don't want to look sick even if I am. I'm getting a fairly big headache right now. I'm not sure if it is because of the chemo or my neck kind of hurting today. I got my new pillow from UPS today so hopefully that will improve my sleep at night.
DH stayed home today for a dentist appointment and then spent the remainder of the day working in the yard. I was feeling well enough that I took the elementary school kids to their parent/teacher conferences while DH cleaned up the yard work he had been working on. I wore one of my new hats that I had ordered and I thought it looked pretty cute, especially since I still have some hair underneath it. After I got back DH drove me out to the hospital to see my sister and her new baby - such a tiny, cute thing! I took some Tylenol for my headache and it finally kicked in just before we got to the hospital. After we got back home it took a little while to get the house cleaned up a bit and the kids off to bed.
Don't have much of an appetite today. I've had to force some food down just so I can have something in my stomach so I don't get nauseous. I hope I can get a good night's rest tonight!
I got a call from my oncology team nurse this morning. (BTW - her name is Stephanie too. I have had several nurses through this whole process that have been named Stephanie. It's been kind of weird.). Anyway, Stephanie called to give me my results from my latest CA-125 test which they did as part of my lab work yesterday. She said that the day before my first chemo treatment the number had jumped up to about 6200 (my initial test number was 5700) and yesterday my reading was 2227! She said that that was a very significant drop after just one chemo treatment and the whole team is very pleased with how well I appear to be responding to the chemo!
Side effects: We discussed my side effects yesterday and what I can do to try and minimize them after my second chemo treatment. My biggest problem last time was the constipation so we discussed starting taking the Senokot right away starting the day of my chemo. So I took some last night before bed. My next biggest side effect has been some tingling and loss of some feeling in my feet. The chemo drugs can affect the nerves and cause peripheral neuropathy. Right now it is not too severe, but it is something that I need to monitor. It kind of came and went off and on with my last treatment and was almost completely gone by yesterday. The nurse practitioner suggested I take some Vitamin B6 and possibly try an arthritis cream that has jalapenos in it and is supposed to help with the circulation and help warm up the feet. So far I haven't noticed it affecting my hands at all so I will keep my fingers crossed! I don't think there is much they can do for the chemo brain side effect - just rest. I was told that having a period after my first shot to shut down my ovaries is normal. Hopefully that will be the last one I will have to deal with. It is a shot that I will be getting monthly though until my surgery takes place.
Wow I lost a ton of hair today in the shower! I have a very obvious bald spot in the very front of my head. I think I will wear a hat if I go out at all today... I'm not quite ready to shave my head yet, but getting close to it. I'm not very excited about losing my hair, even though I am resigned to the fact that it is going to happen. That is one of the most obvious signs that a woman has cancer and is going through chemotherapy. Men have it easier because it is not uncommon to see bald men. Women on the other hand is a different story. My big concern is that I just want to lo normal and not stand out. I don't want to look sick even if I am. I'm getting a fairly big headache right now. I'm not sure if it is because of the chemo or my neck kind of hurting today. I got my new pillow from UPS today so hopefully that will improve my sleep at night.
DH stayed home today for a dentist appointment and then spent the remainder of the day working in the yard. I was feeling well enough that I took the elementary school kids to their parent/teacher conferences while DH cleaned up the yard work he had been working on. I wore one of my new hats that I had ordered and I thought it looked pretty cute, especially since I still have some hair underneath it. After I got back DH drove me out to the hospital to see my sister and her new baby - such a tiny, cute thing! I took some Tylenol for my headache and it finally kicked in just before we got to the hospital. After we got back home it took a little while to get the house cleaned up a bit and the kids off to bed.
Don't have much of an appetite today. I've had to force some food down just so I can have something in my stomach so I don't get nauseous. I hope I can get a good night's rest tonight!
Labels:
CA-125
Wednesday, November 9, 2011
My parents come over early to watch the kids for us. They see the older ones off to school and then stay with the two little ones the whole day. My almost two year old nephew also comes over to spend a good chunk of the day because my sister just had her second baby yesterday (3 weeks early) and will be in the hospital for a couple of days.
I have an appointment for blood work at 8:10 this morning and then meet with my oncology team shortly after that. Everyone keeps commenting on the fact that I still have hair, so that is a good thing! I didn't lose as much weight as I thought I had, but every little bit helps. They discuss some of my blood work tests and say that my whilte blood cell count dropped pretty low the second week, but was pretty much back to normal this week. All the other tests came back normal except my blood sugar level was a little elevated - they attribute that to the steroid I am on. We also discuss the symptoms that I have experienced and how to deal with them. The nurse practitioner feels my abdomen and she said that last time she saw me she could definitely feel the tumor and this time if she didn't know that it was there, she probably would not have noticed it. Yea! Some good news! Hopefully the chemo treatment is working well and I can only hope that the liver is being affected the same way.
Then we were walked over to the new infusion room that just opened up since my last infusion. We checked in at the front desk and then sat down in the waiting room for a few minutes until they called me back. All I can say is "Wow!" about the new infusion room! It is super spacious and a beautiful room. Each person has a ton more space than the old room, their own personal TV and Blu-ray player, and all the reclining chairs face huge open windows that look over the Salt Lake Valley. It's much more private than the old room because in the old room we were all facing each other and there was very little space between the chairs.
My infusion started about an hour sooner than last time, but we also had a third drug added that took 90 minutes to infuse. Things went a little quicker since it was my second time with the other drugs so we actually ended about the same time as last time. I reacted to the Benadryl again. It was almost an immediate reaction after they started it. It was really weird. I almost immediately started feeling woozy and lightheaded and had to lay down because I was afraid I was going to pass put if I didn't. Other than that the only other reaction I felt was a headache that came on during the second drug. I'm not sure though if it was the drug causing it or the chair that I couldn't seem to get comfortable in today. I laid down for a little bit and tried to sleep and then I felt better after a little while. I still have a small headache later, but it isn't too bad right now.
Other than that things were pretty uneventful. DH was with me most of the time (except when he got us lunch and used the restroom). He read a book and did some work on his laptop. I mostly did things on my ipad. I tried reading a little but had a hard tme concentrating on it.
We left the hospital a little after 5:00 and after listening to the traffic reports took an alternate drive home and ended up taking about an hour - much better than the hour and a half from last time.
My parents fed the kids the dinner that was brought over by a ward member and then DH and I ate when we got home. The little girls were particularly happy to see us when we arrived. Then DH went with M&M to our ward's YW in Excellence night.
I have an appointment for blood work at 8:10 this morning and then meet with my oncology team shortly after that. Everyone keeps commenting on the fact that I still have hair, so that is a good thing! I didn't lose as much weight as I thought I had, but every little bit helps. They discuss some of my blood work tests and say that my whilte blood cell count dropped pretty low the second week, but was pretty much back to normal this week. All the other tests came back normal except my blood sugar level was a little elevated - they attribute that to the steroid I am on. We also discuss the symptoms that I have experienced and how to deal with them. The nurse practitioner feels my abdomen and she said that last time she saw me she could definitely feel the tumor and this time if she didn't know that it was there, she probably would not have noticed it. Yea! Some good news! Hopefully the chemo treatment is working well and I can only hope that the liver is being affected the same way.
Then we were walked over to the new infusion room that just opened up since my last infusion. We checked in at the front desk and then sat down in the waiting room for a few minutes until they called me back. All I can say is "Wow!" about the new infusion room! It is super spacious and a beautiful room. Each person has a ton more space than the old room, their own personal TV and Blu-ray player, and all the reclining chairs face huge open windows that look over the Salt Lake Valley. It's much more private than the old room because in the old room we were all facing each other and there was very little space between the chairs.
My infusion started about an hour sooner than last time, but we also had a third drug added that took 90 minutes to infuse. Things went a little quicker since it was my second time with the other drugs so we actually ended about the same time as last time. I reacted to the Benadryl again. It was almost an immediate reaction after they started it. It was really weird. I almost immediately started feeling woozy and lightheaded and had to lay down because I was afraid I was going to pass put if I didn't. Other than that the only other reaction I felt was a headache that came on during the second drug. I'm not sure though if it was the drug causing it or the chair that I couldn't seem to get comfortable in today. I laid down for a little bit and tried to sleep and then I felt better after a little while. I still have a small headache later, but it isn't too bad right now.
Other than that things were pretty uneventful. DH was with me most of the time (except when he got us lunch and used the restroom). He read a book and did some work on his laptop. I mostly did things on my ipad. I tried reading a little but had a hard tme concentrating on it.
We left the hospital a little after 5:00 and after listening to the traffic reports took an alternate drive home and ended up taking about an hour - much better than the hour and a half from last time.
My parents fed the kids the dinner that was brought over by a ward member and then DH and I ate when we got home. The little girls were particularly happy to see us when we arrived. Then DH went with M&M to our ward's YW in Excellence night.
Labels:
chemo
Another fill in the blank:
Saturday, October 29
I woke up this morning with a ton of food cravings. I was laying there in bed and kept thinking about some different recipes that I am in the mood to try. I guess that means that my appetite and taste is coming back. I haven't enjoyed foods a lot since my chemo treatment - they all taste pretty bland to me. After I got up I wrote down some foods on my shopping list so that I can pick up the ingredients for some of them. Then I cooked myself some scrambled eggs for breakfast.
Monday, October 31
I've still been having a lot of cravings for food lately. If I didn't know it was impossible at this point, I might begin to wonder if I was pregnant...
Saturday, October 29
I woke up this morning with a ton of food cravings. I was laying there in bed and kept thinking about some different recipes that I am in the mood to try. I guess that means that my appetite and taste is coming back. I haven't enjoyed foods a lot since my chemo treatment - they all taste pretty bland to me. After I got up I wrote down some foods on my shopping list so that I can pick up the ingredients for some of them. Then I cooked myself some scrambled eggs for breakfast.
Monday, October 31
I've still been having a lot of cravings for food lately. If I didn't know it was impossible at this point, I might begin to wonder if I was pregnant...
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